My name is Benjamin Maly and I was born on 11th October 2013 with a heart condition called Tetralogy of Fallot.
After numerous blue spells and visits to Bolton hospital, I was referred, on 4th December, to Alder Hey Children’s Hospital to fix my heart.
On 10th December, I underwent 5 hours of open heart surgery to correct my heart condition. My surgery went well but on 11th December, I went into cardiac arrest. I had to have two further emergency open heart surgeries and was put on the ECMO machine, which provides both cardiac and respiratory support to patients whose heart and lungs are severely compromised. I spent 2 days on the ECMO machine and over 14 days in intensive care following further complications.
My first Christmas and New Year was spent in Alder Hey hospital and I was finally discharged on Tuesday 7th January 2014. Since then it has been discovered that I still have another VSD (hole in the heart) and will need ANOTHER open heart surgery to repair this.
I have been through so much in such a short space of time and my parents and I feel very humble and so grateful to all the surgeons, consultants, doctors and nurses that ultimately saved my life.
With this in mind and with the help of my Mummy and Daddy (Graham Maly, Secretary, The PGA in England & Wales North), I am organising a Charity Golf Day, at Marriott Worsley Park on Friday 17th October 2014, for the ‘Cardiac Surgical Fund’ at Alder Hey Hospital.
In addition to the golf, I hope to raise money through various events prior and during the golf day including selling raffle tickets and an auction.
If you could donate some money to my fund I would be very grateful.
I hope it will be a fantastic day and plan on presenting a cheque to my surgeon at the conclusion of the day.
I hope that you are able to help me raise as much money as possible so the surgeons and doctors at Alder Hey Hospital can continue to help save other children’s lives the way they saved mine.